Dear ………., a letter to family and friends….

Hi. My name is Hashimoto’s, and I’m an invisible autoimmune chronic illness that attacks your thyroid gland.

I am now velcroed to you for life.

Others around you can’t see me or hear me, but YOUR body feels me.

I can attack you anywhere and anyhow I please.

I can cause severe pain or, if I’m in a good mood, I can just cause you to ache all over.

Remember when you and energy ran around together and had fun?

I took energy from you, and gave you exhaustion. Try to have fun now!

I can take good sleep from you and in its place, give you brain fog and lack of concentration.

I can make you want to sleep 24/7, and I can also cause insomnia.

I can make you tremble internally or make you feel cold or hot when everyone else feels normal.

I can also give you swollen hands and feet, swollen face and eyelids, swollen everything!

Oh, yeah, I can make you feel very anxious or very depressed, too.

I can make your hair fall out, become dry and brittle, cause acne, cause dry skin, the sky is the limit with me!

I can make you gain weight and no matter what you eat or how much you exercise, I can keep that weight on you. I can also make you loose weight. I don’t discriminate.

Some of my other autoimmune disease friends often join me, giving you even more to deal with.

If you have something planned, or are looking forward to a great day, I can take that away from you. You didn’t ask for me. I chose you for various reasons:

That virus or viruses you had that you never really recovered from, or that car accident, or maybe it was the years of abuse and trauma (I thrive on stress.) Maybe you have a family history of me. Whatever the cause, I’m here to stay.

I hear you’re going to see a doctor to try and get rid of me. That makes me laugh!  Just try. You will have to go to many, many doctors until you find one who can help you effectively.

You will be put on the wrong thyroid meds for you, pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given anti-anxiety pills and antidepressants.

There are so many other ways I can make you sick and miserable, the list is endless – that high cholesterol, gall bladder issue, blood pressure issue, blood sugar issue, heart issue among others? That’s probably me.

Can’t get pregnant, or have had a miscarriage?

That’s probably me too.

Teeth and gum problems? TMJ? I told you the list was endless. 

You may be given a TENs unit, get massaged, told if you just sleep and exercise properly I will go away.

You’ll be told to think positively, you’ll be poked, prodded, and MOST OF ALL, not taken seriously when you try to explain to the doctor how debilitating I am and how sick you really feel.

Your family, friends and co-workers will all listen to you until they just get tired of hearing about how I make you feel, and just how debilitating I can be.

Some of them will say things like “Oh, you are just having a bad day” or “Well, remember, you can’t do the things you use to do 20 YEARS ago”, not hearing that you said 20 DAYS ago.

Some will start talking behind your back, they’ll call you a hypochondriac, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a “normal” person, and can’t remember what you were going to say next.

I’ve been trying to keep this next part quiet, but since you’re reading this you already know.

The only place you will get the kind of support and understanding in dealing with me, is with other people that have me. They are really the only ones who can truly understand.

I am Hashimoto’s Disease.

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6 thoughts on “Dear ………., a letter to family and friends….

    • Walter…there is so much new info on auto immune disease’s now. I think a lot has to do with the pesticides and chemicals that are in our food, they attack the body and do wierd things to you. Hashi’s is a terrible disease for anyone that knows it will tell you. I have Hashimoto’s, but I try to not let it define me.

  1. Thank you so much for this! I have Hashimoto’s, and I feel like it has taken everything good and joyful about life and living away from me. I’m taking Levothyroxine, and NO benefit what-so-ever. Tired, SO tired of fighting with the doctors, tired of fighting my way through life.

    • Sabrina…..I know it’s such a bitch isn’t it?! I know it will get better for you though. I would suggest a group on Facebook called “Thyroid Sexy” it’s so great and tons of people sharing info. I think there’s like 13,000 members. Anyway I learn a lot on that group. Keep staying vigilant with your medication and tell your doc your not feeling optimal. If they don’t help you , move on! Myself? My doc is Theodore Friedman, he is a great doc and a researcher to boot. He is going to test me for a pituitary growth to rule that out. I’ve lost 1/3 of my hair, and overweight, dry skin, swollen all over the place yada yada yada…so many symptoms. I hate it also! Keep me informed and I wish you success with this horrendous battle and disease. Luvs, Deb

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